Physically and morally, some women who suffer from endometriosis, a chronic inflammatory disease, decide to have the uterus removed. This choice has repercussions on their fertility, their relation to femininity and sometimes even their sex life. But to get there, most fought hard and took years to find a listening ear.
“A deliverance”, “the miracle solution”, “a salutary operation”. For women who have endometriosis, hysterectomy – a surgical procedure that involves removal of the uterus – is often the term of years of struggle against excruciating pain.
However, getting the approval of a doctor for such an intervention is not an easy task. Some had to fight to get even the diagnosis of their disease by stressing their ills: nausea, very strong abdominal pain – to the point of being unable to do anything – or heavy bleeding .
What is endometriosis?
Endometriosis is a gynecological disease characterized by the presence of endometrial tissues outside the uterus, either on the ovaries, tubes or ligaments that support the uterus and also on nearby organs such as the bladder and the uterus. ‘intestine. It is estimated that in the world, 10% to 15% of women suffer.
According to data from Endometriosis Network Canada, a non-profit organization, the disease is diagnosed correctly after 10 years on average, while it is usually present at the first menses.
Accused of adding more, of simply not wanting to go to work or to be cozy, some women ended up facing a wall. However, endometriosis occupies an immense place in their lives, which they must articulate around this disease, as for Cindy Sirois, who was diagnosed at the age of 27.
I was told that all women have pain during their periods, that it was in my head that I was not strong enough.
A recurrent speech
Dr. Ian Brochu, a specialist in endometriosis at the Montreal CHUM Pain Clinic, is not surprised by these testimonies.
“It’s a speech we often hear. There is still the misconception that the rules are necessarily painful. In general, there is a lack of knowledge about menstruation, especially because it is a complex subject, which requires the involvement of several specialists, “he says.
For these women, the recognition of their disease is only the beginning of a long way of the cross, because afterwards, hormonal treatments or laparoscopy – an operation that consists of observing the inside of the reproductive system for possible burn endometriosis tasks – are part of their daily lives.
Hysterectomy is the last resort. This operation is even providential. Because the uterus of these women is the origin of their pain, it’s like “one leg with gangrene,” says Cindy Sirois.
We suffer so much, that it seems to us the only solution
Renata Clack is a reporter for Spruce Tribune. She’s worked and interned at Glboal News Toronto and CHECX. Renata is based in Toronto and covers issues affecting her city. In addition to her severe Cinnabon addiction, she’s a Netflix enthusiast, a red wine drinker, and a voracious reader.